Friday, January 4, 2013
At 1:30 AM on New Year's Day, Little Miss had a bad dream. I brought her to our bed and snuggled her in -- and with no more fuss, she settled in and went to sleep.
Looking back, I'm grateful for that bad dream because it brought her next to me. Otherwise, I would have never felt the staccato kicks that woke me at 3:30 that morning.
Something was wrong. I mean Little Miss kicks me in bed all the time -- but those rapid-fire kicks? My spidey sense was all tingly. I fumbled for the light and called for my husband to wake up at the same time.
Little Miss was already mid-seizure. She had been laying on her back and choked on a bit of saliva as the seizure began and we struggled to get her airway open.
Less than a minute later, she relaxed and settled into that comatose after-seizure sleep. Her heart rate was high and thinking something else might be going on, I checked her temp. It was 97.7.
We watched her for a little while, but after assuring ourselves that she just needed rest, I flicked off the light.
At 4:30 we woke to a horrible noise. Little Miss was having another seizure. I ran for the emergency meds and my phone, but the seizure ended before our 3-minute "do or die" meds deadline. This time, Little Miss settled more easily and into a more restful sleep. We figured that the worst was over.
In fact, we got through the next 6 hours pretty well. Little Miss was tired -- but we all were. So we watched Beauty & The Beast and hung out on the sofa.
At 10:30, Little Miss had another seizure. When it ended, we called our parents to let them know what was going on and headed for the ER.
At the ER, we found that Little Miss had spiked a temperature of 102.7. She was given Tylenol and a series of standard tests (blood work, chest x-ray, etc.) to rule out infection. Everything came back negative.
But we still had to collect a urine sample.
Let me just say that this is the part where families who have children on the spectrum along with seizure disorders have it rough. We could not get the sample. And we literally tried everything. I mean, how do you explain to a child who doesn't understand toilet training that you need to collect a urine sample? It just doesn't work.
I won't go into detail, but the sample was collected. And the collection method was definitely our last choice. And the test was run, and we found out that it was all for a urinary tract infection.
A simple, run-of-the-mill, UTI that probably wouldn't have happened if Little Miss could just understand that she needs to learn to use the potty sooner rather than later. Or... if not avoid the UTI entirely -- if we could just get the little phrase "mommy, I don't feel good" and avoid the whole trip to the ER.
We've come a LONG way, baby... but we are already lining up the goals for 2013. Happy new year. At least the medical deductible is out of the way, right?